Metadata Catalog

Country \| Documentation language	Data source: local name \| English name	Data originator	Underlying population	Prompt: event causing a record in the data source	Content in Real4Reg	Data dictionaries	Years covered	Reference
DENMARK Danish	CPR- registeret \| CPR Registry	Civil Registration System	All residents	Birth Immigration	Personal identifier Sex Age Residence Vital status Migrations	Local structured codes Dates	1961-	Schmidt M et al. The Danish Civil Registration System as a tool in epidemiology. Eur J Epidemiol 2014 Webpage Reference
DENMARK Danish	Lægemiddel- statistik- registeret \| National Prescription Registry	Community pharmacies	All residents	Pharmacy dispensing of a prescribed medicine	Active substance Date of dispensing Amount dispensed	ATC Dates Alphanumeric data	1994-	Pottegard A et al. Data Resource Profile: The Danish National Prescription Registry. Int J Epidemiol 2017 Webpage Reference
DENMARK Danish	Landspatient- registeret \| National Patient Registry	Private and public ambulatory and inpatient hospital departments	All residents	Hospitalization Visit to a hospital specialist clinic	Discharge diagnoses Surgeries Hospital treatments Diagnostic procedures	ICD-10 NOMESCO Local structured codes	1977-	Schmidt M et al. The Danish National Patient Registry: a review of content, data quality, and research potential. Clin Epidemiol 2015 Webpage Reference
DENMARK Danish	Patologi- registeret \| Pathology Registry	Pathology departments	All residents	Pathology report	Molecular/genetic profile (breast cancer)	SNOMED	1970-	Erichsen R et al. Existing data sources for clinical epidemiology: the Danish National Pathology Registry and Data Bank. Clin Epidemiol 2010 Webpage Reference
DENMARK Danish	Cancer- registeret \| Cancer Registry	Oncology departments	All residents	Diagnosis of new primary malignancy	Diagnosis Morphology Stage at diagnosis	ICD-10 ICD-O TNM	1943-	Gjerstorff ML. The Danish Cancer Registry. Scand J Public Health 2011 Webpage Reference
DENMARK Danish	Dødsårsags- registeret \| Cause of Death Registry	Death certificates	All residents	Death certificate	Inderlying cause of death Immediate cause of death	ICD-10	1970-	Helweg-Larsen K. The Danish Register of Causes of Death. Scand J Public Health 2011 Webpage Reference
FINLAND Finnish	DVV väestö- tieto- järjestelmä \| Population information system	Civil Registration System	All residents	Birth Immigration, Emigration	Personal identifier Sex Age Residence Vital status Migrations	Local structured codes Dates	1530-	Webpage
FINLAND Finnish	Lääke- toimitukset Kanta- Resepti- keskus \| Kanta electronic prescriptions dispensings	Community pharmacies	All residents	Pharmacy dispensing of a prescribed medicine	Active substance Drug name Date of dispensing Amount dispensed Strenght	ATC Dates Alphanumeric data	2010-	Webpage
FINLAND Finnish	Sairaus- vakuutukse- sta korvattavat lääke- toimitukset \| Dispensed medicines reimbursable under the National Health Insurance scheme	Community pharmacies	All residents	Pharmacy dispensing of a prescribed medicine reimbursable under the National Health Insurance scheme	Active substance Drug name Date of dispensing Amount dispensed Strenght	ATC Dates Alphanumeric data	1995-	Webpage
FINLAND Finnish	Lääke- korvausoi- keudet \| Entitlements to reimbursement of pharmaceutical expenses	Private and public primary and secondary healthcare	All residents	Reimbursement of pharmaceutical expenses	Comorbidity information, Reimbursement code	Dates Local structured codes ICD9, ICD10	1972-	Webpage
FINLAND Finnish	Terveyden- huollon hoitoilmoitus- rekisteri \| Care Register for Health Care	Private and public inpatient	All residents	Hospitalization	Diagnosis Procedures Required level of assistence at discharge	Dates ICD-10, ICD-9 NOMESCO	1972-	Keskimäki I, Aro. Accuracy of data on diagnosis, procedures and accidents in the Finnish Hospital Register. Int J Health Sci. 1991;2:15–21. Webpage 1 Webpage 2
FINLAND Finnish	Perus- terveyden- huollon avohoidon hoitoilmoitus- rekisteri AvoHILMO \| Register of Primary Health Care Visits	Public healthcare	All residents	Primary Health Care Visits	General healthcare outpatient visits Diagnosis Procedure	Dates ICD-10 NOMESCO ICPC-2	2011-	Webpage 1 Webpage 2
FINLAND Finnish	Kuoleman- syiden tutkimusai- neisto \| Causes of Death Register	Death certificaties	All residents	Death certificaties	Death dates, causes, how the cause was ascertained	Dates Local structured codes ICD10	1972-	Webpage 1 Webpage 2
FINLAND	Syöpä- rekisteri \| Cancer Registry	Oncology clinics	All residents	Cancer diagnosis	Cancer diagnosis	ICD-10 ICD-O3 Dates	1953-	Webpage 1 Webpage 2
PORTUGAL Portuguese	Registo Nacional de Utentes \| National User Register	National Health Service (NHS)	All residents	Issuance of the Citizen Card (autmatically), or manually by healthcare administrative staff (in some cases)	Personal identifier (pseudonymized) Date of birth Date of death Sex	Local structured codes Dates		Webpage
PORTUGAL Portuguese	Base de Dados Nacional de Prescrição (BDNP) \| National Prescription Database	National Health System (NHS)	All residents	Pharmacy dispensing of a prescribed medicine reimbursed by the NHS	Medicine Product Number Date of dispensing Amount dispensed	Local structured codes Dates ATC Alphanumeric data	2016-
PORTUGAL Portuguese	Base de Dados de Morbilidade Hospitalar (BDMH) \| Hospital Morbidity Database	Public hospital care	All residents	Hospital visit	Diagnosis Procedures	Local structured codes Dates ICD-9-CM/Vol3 ICD-10-CM/PCS
PORTUGAL Portuguese	SIM@SNS — Sistema de Informação e Monitorização do SNS \| NHS Information and Monitoring System	NHS -Primary Care	All residents	Primary health care visit	Diagnosis Problems Procedures	Local structured codes Dates ICPC-2
PORTUGAL Portuguese	Registo Oncológico Nacional (RON) \| Cancer register database	Oncology services of the hospitals	All residents	Cancer diagnosis	Diagnosis Morphology Topography Treatments Procedures	Local structured codes Dates ICD-O3		Webpage
PORTUGAL Portuguese	Sistema de Informação dos Certificados de Óbito (SICO) \| Death register database	Death certificates	All residents	Death certificates	Death date Death cause	Dates ICD-10	2013-	Webpage
GERMANY German	Forschungs- daten- zentrum Gesundheit \| Health Data Lab	Statutory health insurance companies	Statutory insured people in Germany	Becoming a member of a German statutory health insurance company Inpatient or outpatient visit Inpatient or outpatient diagnosis drug prescription Inpatient or outpatient procedure	Year of birth Sex Insurance interval Location Vital status Date of admission Date of discharge Diagnosis Procedure Prescribed substances (outpatient visits) Date of prescription (outpatient visits) Date of dispensing (outpatient visits) Dose (outpatient visits)	Local structured codes Dates ICD-10-GM ATC OPS Alphanumeric data	2009-	Ludwig M et al Aufbau des neuen „Forschungs- datenzentrums Gesundheit“ zur Daten- bereitstellung für die Wissenschaft. Bundes- gesundheitsblatt Gesundheits- forschung Gesundheits- schutz 2024 Webpage 1 Webpage 2 Reference

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